Recently, an ALS patient Jason Hall discovered that the concentration of copper not bound in the ceruloplasmin protein was elevated according to several laboratory analyses he had received from ALS patients all around the world.
We collected a bunch of ALS patients, had the labs done and found there indeed seems to be correlation of the non-ceruloplasmin bound copper and status and rate of ALS progression. Here's an article of our findings:
Our study continues with an attempt to lower the free copper concentration with methods commonly used in conjunction with Wilson's disease. The ALS progression rate of the participants is being constantly monitored.
The study group has its own discussion forum (password required).
